Health and Medicine

Tune In To Music Therapy’s Healing Powers

It’s amazing to see how making and playing music helps both those with Alzheimer’s and their family caregivers. For a story I wrote, I interviewed Gabby Giffords’s music therapist. I also watched a chorus in New York made up of dementia patients and their partners, spouses and kids. A moment of normalcy and pleasure–together–in otherwise very difficult lives.

Here’s a piece I wrote for AARP aptly named “The Power of Music”:

Geriatrician Theresa Allison can’t talk with her grandmother. Alzheimer’s disease has left her without the ability to see, converse or recognize her granddaughter. Yet the two are able to interact. Instead of talking, they sing. “I’ve watched her babble nonsense, but then bounce my son on her knee as we sing a folk song she taught me as a child. For 45 seconds, life is completely normal,” says Allison. “Engaging this way is profoundly meaningful.”

Allison, a musicologist as well as physician and assistant professor in the Division of Geriatrics at the University of California, San Francisco, sometimes sings songs with her frightened or confused patients to get them to relax during a physical exam. And she encourages generous doses of music in caregiving, whether the loved one is cognitively intact or has memory loss.

The healing power of music was recognized in ancient Greece; Aristotle and Plato wrote about it. And though the field of music therapy formally debuted in 1950, but has only recently gained many fans, including hospitals, adult day care and senior centers, and nursing homes. Health care professionals often refer patients to music therapists — the country has more than 6,000 music therapists nationally certified through the American Music Therapy Association and they can help you find one in your area. Health workers are also using music to treat a long list of conditions: depression, Tourette’s syndrome, Huntington’s disease, autism, Parkinson’s disease, stroke, brain injury and cardiac disease. It can be part of pain management and cancer treatments.

Lately, researchers have focused on how music can benefit those with Alzheimer’s. Anecdotal evidence shows that music can tap memories and reduce anxiety, pain, heart rate and blood pressure. It can help accelerate healing, boost learning, improve neurological disorders and increase social interaction.

Sophisticated imaging techniques such as PET scans and MRIs are beginning to reveal the full picture. “Neuroscientists who have wondered how someone with a stroke or brain injury can recover speech by singing, or why a person with Parkinson’s can walk or dance to music but not without it, have now acquired the technology to see, in real time, how music stimulates and activates networks in the brain,” says Connie Tomaino, executive director of the Institute for Music and Neurologic Function in New York. The research is still in its infancy, she says, but it suggests that music may improve specific function such as speech and movement.

If you’re a caregiver, music can also help you with daily caregiving routine. Music therapists offer these suggestions:

Select familiar songs

Most people remember music from childhood or when they were in their 20s. Does Mom love opera or show tunes? What songs make her dance?

After former U.S. Rep. Gabrielle Giffords was shot in January 2011 and suffered brain damage, she was unable to speak. But her mother knew her favorite songs — ”American Pie,” ”Brown Eyed Girl,” “Over the Rainbow” — and along with Giffords’ dad, husband and music therapist, surrounded her with the music she loved.

“Gabby could sing several words in a phrase, but couldn’t put a three-word sentence together on her own,” says her music therapist, Maegan Morrow, of TIRR Memorial Hermann hospital in Houston. Morrow had her sing her needs, such as “I want to go to bed” or “I’m tired.” Help your loved one recall words by singing part of a familiar song and having her finish the line with you, or alone.

 Choose your music source

Pick what works best for you: a CD player, an MP3 player or iPod, a tablet like an iPad or a Kindle, or a time-tested turntable and vinyl collection. No music of your own? Local libraries often have good CD selections.

The website Pandora.com will tailor a radio station to match your musical taste when you select an artist, song or genre. And Musicandmemory.org offers a free guide to creating a personalized playlist. (Find music collections we’ve put together from the website Spotify to help you with caregiving.)

Use music to alter moods

Diagnosed with Parkinson’s, Domenic Trifone, 59, of Newington, Conn., has difficulty walking and doing things on his own, which leaves the retired postal worker depressed. But when his wife, Susan, 56, plays Gregorian chants or opera, he is soothed. When she plays his favorite Billy Joel or Jim Croce songs, she’ll often dance, pulling him up to join her.

Donna Poulos has seen the effect music has on her 90-year-old mother, Grace Long. “When I’d leave her house, my mother would be sad, but if I put on classical or opera, she wouldn’t miss me. Instead, she’d wave good-bye, close her eyes and be transported by the music,” says Poulos, a grade school music teacher from Los Altos, Calif. When Poulos is driving with her mother, Long sways to the music and taps her toes, or they sing old tunes such as “Oh, What a Beautiful Mornin’ ” and “This Land Is Your Land.”

“I really think music is one of the things that has kept her alive and happy,” says Poulos.

Gear music to activities

You can use music to get loved ones through transitions, whether it’s moving from one room to another or on to a different task, says Alicia Clair, professor of music therapy at the University of Kansas. Play peaceful music when Mom is waking up. Pick up the pace with active, upbeat songs when getting her dressed for the day.

“One of the best ways to get directions across is to sing, rather than speak, them,” says Clair, who for 20 years has used music therapy for people with dementia. “Never use loud, frenetic music,” she warns. Need to coax a loved one into the shower? Put on Duke Ellington and dance together into the bathroom.

Make music together

Sitting together and listening to music can be bonding. Taking care of someone who can’t communicate can make a caregiver feel lonely and unable to relate, but music can provide a way to connect that is profoundly meaningful.

A pilot study by New York University Langone Medical Center’s Comprehensive Center on Brain Aging found that members of the Unforgettables, a New York City chorus made up of those with early to mid-stage Alzheimer’s and their caregiving spouses and children, reported more self-esteem, better moods, less depression and a greater quality of life after 13 rehearsals and one concert.

Joe Fabiano, 65, has been bringing his wife, Anita, 65, to the two-hour weekly rehearsals since the chorus was formed two years ago. “This is something we can share,” says Joe. “It makes me think of the old days, when we were happy.” Says Anita: “It’s good for my husband and helps me a lot. I like the camaraderie.”

That camaraderie can also ward off the loneliness that often accompanies caring for those with dementia. Husbands, wives and partners appreciate being with others who are dealing with the condition. “Having a place where there are people who can be together in a supportive, caring group is wonderful,” says Josephine Gruder. She brings her husband, Herman, 85, a former longshoreman.

Social worker Suzie Engel, 66, sang in the chorus with her mother, Norma, who died in January 2012. Engel still attends. “This group is like family,” she says.

The Unforgettables’ co-conductors, Dale Lamb and Tania Papayannopoulou, a music therapist from the Institute for Music and Neurologic Function and a pianist/singer, teach the group breathing, vocalizing, musical memory exercises and movement—good stress relievers as well as mental and physical exercise for all.

Not a singer? Consider rhythm. Drumming with others later in life is also a growing trend, according to Encinitas, Calif., music therapist and author Christine Stevens, who teaches health care professionals and family caregivers about percussion. “You don’t have to be musical whatsoever,” says Stevens. In her hospital room, former Rep. Giffords participated in a drum circle with her family and friends. Remo, a drum manufacturer, offers a “health rhythms” section on their website that discusses the health benefits of drumming and how to find a drumming group.

Tune in to your own needs

Music can be a great source of relief and pleasure. When her husband is at adult day care, during other times of the day, or before bed, Susan Trifone will turn on the tunes. “My body gets in rhythm to the beat and it makes me feel much better. But even more, music helps me get away from my everyday problems.”

There’s a (Music) App for That

If you can’t join a music group, you can mimic what they do with applications for your smartphone or tablet.

SingFit: Designed by a music therapist, this app is like a portable karaoke machine that helps participants sing along by providing lyric prompts, adjustable music volume and keys, and voice playback. Available for Apple products.

Magic Piano: Tap the dots on the screen and it plays songs at varying speeds. For both Android and Apple products.

Songify: This app turns something you said—a poem, a birthday greeting, a passage from a book—into a song. For both Android and Apple products.

 

 

Posted in Aging and Baby Boomers, Aging Parents, Caregiving, Health and Medicine Tagged , , , , , ,

Flu is You: What Caregivers Need to Know

Getting the flu is brutal, and boy do I know! I was out of commission for more than a week this month. One person I steered clear of was my 93-year-old mother-in-law. The weakened immune system of older adults makes them more likely to get the flu and life-threatening complications. The majority of deaths–a staggering 90%–and 60 percent of hospitalizations for flu occur in those age 65+.

As a caregiver, you don’t want to give  it to your loved one, and you definitely don’t want to get it. Who will take care of them then?

So what can you do to prevent the flu? First off, tissues and hand sanitizer must be your new best friends. Next is vigilance.

Whether you’re in close quarters at work, have an older person live with or visit you, care for an older person in his or her home, or transport someone to medical appointments in your car, there are certain flu-fighting rules of the road. They include getting a flu vaccine, washing hands and disinfecting surfaces frequently, and steering clear (if you can) of someone sick.

A little microbiology 101: People contract the flu from an infected person or germy surface (a door knob, elevator button, or train or bus pole, for instance). Droplets from the sick person coughing, sneezing or talking can travel to your mouth or nose.

Here’s what you need to know a la Centers for Disease Control and Prevention:

  1. Yes, absolutely get the flu vaccine, wash your hands and the care recipient’s hands often (after sneezing, handling a tissue, being in close contact with others) with soap and water for at least 20 seconds. If there’s no soap, use an alcohol-based hand sanitizer. If you use a communal pen for credit card payments at store or restaurants, wash your  hands.
  2. Don’t think a flu shot will necessarily prevent the dreaded virus. This year’s flu vaccine is just 62 percent effective. Still, don’t skip it.
  3. Cough or sneeze into a tissue
  4. Take a break from handshaking. You’re not being rude! The same goes for sharing drinks or food.
  5. Don’t go out until 24 hours after your fever is gone.
  6. Have  hand wipes on hand–always. Use them on doorknobs, car door handles, banisters, kitchen counters and exercise equipment.
Parts of this text appeared in my AARP blog.
Posted in Caregiving, Health and Medicine Tagged

Caregiving Tasks: They Keep Coming

Is  there a doctor in the house? You might as well be one, according to a new AARP study of family caregiver responsibilities. I just blogged about the research and realized how lucky I was that I didn’t have to perform medical tasks with my parents or  mother-in-law. Intravenous feedings? Caregiving is already so complicated emotionally and logistically.

 

Examine my blog:

Family caregivers: If you’re ever looking for a new career, you might want to consider nursing or medicine. Results from the national survey “Home Alone: Family Caregivers Providing Complex Chronic Care,” released this week, suggest your learning curve may not be very steep.

Yes, family caregivers still perform typical tasks such as bathing, dressing, toileting, eating, shopping and handling finances. But the survey reveals the scope of duties often goes far beyond these responsibilities to include handling wound care, administering intravenous fluids and operating specialized medical equipment. Home dialysis. Suctioning. Ventilators. Scary!

Add to the list uncooperative recipients, inordinate amounts of time required to perform these sophisticated tasks and stress over making mistakes. What’s more, many of the 1,677 caregivers who participated in this joint AARP Public Policy Institute/United Hospital Fund online survey felt they didn’t get enough training or support.

For further admiration of family caregivers, check out these critical survey findings:

  • 78 percent managed medication, including intravenous feedings, as well as injections. Nearly half dispensed five to nine prescription medications daily and 65 percent also took one to four over-the-counter pills.
  • Almost half, or 46 percent, performed medical/nursing tasks for those with multiple chronic physical and cognitive issues.
  • 53 percent who had medical/nursing responsibilities also coordinated care—more than double the rate of those who predominately gave personal care.
  • More than half who did complex nursing/medical tasks said there was no one else to do it or insurance wouldn’t pay for a professional.
  • The majority managing five or more nursing/medical duties believed their help allowed a family member to stay out of a nursing home. While caregivers felt that they were doing something important, more than half felt depressed or hopeless and more than one-third reported being in fair or poor health.
  • 47 percent had no training for managing the medications, with more than 60 percent saying they learned how to manage at least some of the medications themselves.

Okay readers. What kinds of caregiving duties do you do? Which do you consider the hardest and why? Do you have any strategies to make your job easier? Let’s get the conversation going!

Photo courtesy of cakencookiebakr via Creative Commons

 

Posted in Aging and Baby Boomers, Aging Parents, Health and Medicine, Uncategorized

Gardens as Medicine: 5 Things You Need to Know

courtesy of Massachusetts General Hospital

Want to feel better? Think nature. Healing gardens are a growing trend. Many major medical centers, including the 6,300-square-foot rooftop garden at the Yawkey Center for Outpatient Care, part of the Massachusetts General Hospital in Boston and the NIH Clinical Center, and long-term care facilities, are adding them. And so are homeowners.

The basic elements of a healing or therapeutic garden include:

  • Plants and wildlife
  • Walkways
  • Private sitting areas
  • Shade
  • A water feature

Most are outdoors. Some have raised planters so patients and family members can plant, weed, and work the garden. Sometimes they have medicinal herbs, such as primrose or foxglove.

Scientists say natural settings can lower stress, blood pressure and heart rate, and muscle tension and negative thoughts. The idea is that lowering stress can boost the immune system and speed healing.

Physicians at Jupiter Medical Center in Florida realized that some patients who could see—they didn’t even have to be in—the hospital garden had less pain, needed fewer medications and had shorter stays than patients without a garden view. I don’t know how they figured that out, but what an endorsement!

The gardens’ restorative and medicinal benefits have many converts: substance abuse, pediatric, burn, HIV/AIDS, hospice, cancer, stroke, brain injury, psychiatric, and dementia patients.

But they’re really intended for a wider audience: not just patients, but visitors, family members waiting for surgery to be over, exhausted caregivers, and staff looking for a breather. Some support groups meet in healing gardens.

How come it took so long for us to catch on? They’ve been around forever from the Middle Ages to ancient Egypt and Greece to Japan (as in Zen gardens). In 1879, Friends Hospital in Philadelphia started a program for psychiatric patients who staff noticed were acting calmer after being in the ground gardens.

Don’t have a healing garden? Relax! Here’s what you can do:

  1. Create your own mini-garden. Even on a city balcony, you can have an area of plants. You don’t need all of the features (water, pathways, private sitting areas) to have a lovely oasis.
  2. Have land and want a more professional therapeutic garden? Use a landscape architect.
  3. Call medical centers and ask if they have gardens. Go visit. If you’re considering a home mini-version, see what you like and what you don’t like. Or just enjoy.
  4. The next time you’re visiting a relative or friend in long-term care, take them outside. If there are gardens and pathways on the grounds, hang out there awhile. Walking around the grounds is good exercise for both of you.
  5. If there’s no formal healing garden that you know of, don’t sweat it. Head to your local park or arboretum.

For a better picture of healing gardens:

Posted in Health and Medicine

Do You Mind? Meditation for Caregivers

Grand Velas Riviera Maya via CreativeCommons.org

It’s time to take up meditation. A new UCLA study shows it’s a great stress-buster for caregivers–better, in fact, than a relaxation CD. Participants were taking care of family members with dementia, but it could really apply to any group–and not just caregivers. Who wouldn’t want to feel less depressed and have a sharp brain?

Here are the details from one of my weekly AARP blogs:

For dementia caregivers, it seems that daily meditation can lower depression, improve cognitive functioning—yes, we’re talking about the caregiver here—and even reduce cellular aging caused by stress.

According to a recent UCLA study reported in the International Journal of Geriatric Psychiatry, meditation did a better job of keeping the blues at bay than a relaxation CD given to caregivers.

This study may be small, but compelling because:

  • 5.4 million people in the U.S. have Alzheimer’s
  • More than 15 million Americans do unpaid caregiving for those with dementia
  • 80% of care is provided at home by family caregivers
  • Close to 50% of family dementia caregivers are clinically depressed

Researchers had 49 family caregivers 45-91 years old (36 adult children and 13 spouses) divide into two groups. The meditation group learned a 12-minute Kirtan Kriya yoga practice that included chanting, finger poses, and visualization meditation.

The second group listened to instrumental music on a CD in a quiet place with their eyes closed. The groups did either meditation or relaxation listening at the same time every day for eight weeks.

And the winner is. . .meditation, with 65% showing a 50% improvement on a depression scale (vs. 31% for the CD group), and 52% with a 50% improvement in mental health and cognitive functioning (compared to 19%).

But the next finding may take your breath away. Meditation slowed cellular aging by increasing telomerase activity. Before I lose you: An enzyme known as telomerase is associated with health risks and diseases that can be regulated by stress. Without telomerase activity, the cells divide, and telomeres, as they’re called, become so short they die. So the more there’s telomerase activity, the longer the immune cells will last.

The group practicing meditation had a whopping 43% improvement in telomerase activity, while the relaxation group scored just 3.7%.

UCLA’s caregiver program has added yoga/meditation to its offerings. This doesn’t mean the relaxation CD wasn’t valuable. It, too, reduced depression, boosted mental function, and hiked telomerase activity.

You probably don’t have to take care of someone with dementia to benefit from the UCLA findings, either. Stress from any kind of caregiving can lead to poor mental and physical health. And, meditation can relax the body and the mind.

I’m planning on boning up on Kirtan Kriya. How about you? Here are some resources:

Or, contemplate these other articles on the power of meditation:

  1. Free mindful meditation podcasts from UCLA 
  2. Help for family dementia caregivers 
  3. American Meditation Institute

 



Posted in Health and Medicine

Caring for the Caregiver

Palliative care can be a godsend. I discovered it when my mother was in her final days last summer. My AARP blog on caregiving this week talks about how helpful it was not just for my mother, but for me. For anyone at the end of life (or suffering from medical treatment or a disease), palliative care is a terrific resource. Have you ever used it? What kind of experience did you have?

 

 

Whoever says that older adults tend to disengage from social activities and responsibilities as they age is dead wrong, according to a new study from the Boston College Sloan Center on Aging & Work. Well-being, it shows, is linked to active engagement in paid work, education, volunteering, and, yes, caregiving.

 

Posted in Health and Medicine